Meet Alexia Clinton, a ten-year-old Transplant Games medalist.
Not Your Average Stomachache
Sandra Clinton, Alexia’s mother, recounts the whirlwind of escalating events that led up to her daughter’s heart transplant. “She had a stomachache, so I took her to her pediatrician. I had no idea how serious the problem was,” Sandra says. Her pediatrician detected an abnormal rhythm in Alexia’s heart and sent her straight to Norwood Hospital, where emergency room physicians promptly called for ambulance transport to Boston Children’s.
Alexia was rushed to Boston Children’s Cardiac ICU and spent the next 20 days in an induced coma. The previously healthy, active toddler was diagnosed with dilated cardiomyopathy, which means the main pumping chamber of her heart was stretched out, so that it could no longer pump blood effectively. It was soon clear that Alexia would need a heart transplant.
While the family waited for a donor heart to become available, Alexia was kept alive on a Berlin Heart EXCOR Pediatric, an external ventricular assist device (VAD) connected to the body that pumps blood in place of a patient’s existing, malfunctioning heart. It would be another four years before the Berlin Heart EXCO Pediatric was FDA-approved for use in children. But Dr. Christopher Almond, Alexia’s first cardiologist at Boston Children’s Pediatric Transplant Center, knew it was her only hope.
After 36 days of anticipation, the transplant surgery that saved Alexia’s life was performed on November 7, 2007. She arrived home on her fourth birthday.
Young Alexia was soon thriving again, keeping up with her peers and growing into a smart, adventurous, outgoing girl. Her parents Sandra and Greg Clinton are eternally grateful to the team that saved their daughter’s life, and after six years of quarterly checkups, they have developed close relationships with Dr. Kevin Daly, Dr. Betsy Blume and the entire heart transplant team at Boston Children’s.
Having a transplanted heart will not hold Alexia back. She aspires to be a professional athlete when she grows up, but she is also considering a career in investment finance and following in her father’s footsteps. She enjoys physical education and math class at school and plays a sport for every season: soccer, basketball and softball. Her dream is to play not just one, but two professional sports—preferably baseball and soccer.
Alexia says she would love to compete at the World Transplant Games next summer in Argentina (home to her favorite soccer player, Lionel Messi). Her family, including two sisters who are always by her side, will be there to cheer her on.